Children’s Hospital of Philadelphia receives $650,000 donation to advance brain tumor research and discoveries within the Children’s Brain Tumor Network

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PHILADELPHIA, March 2, 2022 /PRNewswire/ — Children’s Hospital of Philadelphia (CHOP) announced today that it has received a donation from $650,000 from the Lilabean Foundation for Pediatric Brain Cancer Research (LBF) to support Project Accelerate, a program within the Children’s Brain Tumor Network (CBTN) to accelerate the pace of translational research and the discovery of new treatments for children and young adults with advance brain tumors. CBTN is a multi-agency brain tumor research program whose activities are based at the Center for Data Driven Discovery in Biomedicine (D3b) at CHOP.

“Brain tumors are the leading cause of disease-related death in children in countries around the world, yet no drug has been specifically developed to treat pediatric brain tumors,” he said Adam Resnick, PhD, Co-Director of the Center for D3b at CHOP and Scientific Co-Chair of the CBTN. “With the support of the Lilabean Foundation, we are one step closer to identifying new treatment strategies that will lead to new clinical trials and ultimately cures for brain cancer patients.”

What started in 2013 with just four member sites dedicated to data exchange, CBTN is now a global consortium of 28 institutions Europe, Asia, Australia and the US, working together to establish a new standard of care for patients by sharing data, resources and expertise to accelerate and improve discovery. Together they created the first and now largest clinically annotated biorepository with real-time query capabilities with the ability to unlock and analyze samples to understand their molecular structures. However, the windfall of data has created a capacity challenge.

LBF’s increase in funding for CBTN will allow CBTN to hire more data engineers and bioinformaticians to increase its capacity to process and strengthen the data for research use around the world.

“We are honored to support Project Accelerate and the CBTN team as we work together to bring safer and more effective treatments to children like my daughter, Lila,” he said Nicole GirouxFounder and Managing Director of LBF.

“This will be the first time that researchers will have so much data on pediatric brain cancer immediately available, which has the potential to transform the landscape of pediatric brain cancer research and treatment and help find the answers for every child with a brain cancer.” said Dr Resnick.

The Lilabean Foundation is a member of the CBTN Executive Council and has funded more than to date 2 million dollars for brain tumor research in children over a period of 10 years. Based in Washington, D.CLBF was founded in 2012 by Nicole Giroux in honor of her daughter Lila, who was diagnosed with low-grade glioma at the age of 15 months. Since her diagnosis, Lila has received a wide variety of chemotherapy regimens, and the Giroux family has seen firsthand the urgent need for research to inform safer treatment options. The Lilabean Foundation’s mission is to fund important brain cancer research in children and raise awareness of the seriousness of the disease.

The funding complements recent funding from the National Cancer Institute’s Childhood Cancer Data Initiative, part of the National Institutes of Health.

About the Children’s Hospital of Philadelphia
A non-profit, charitable organization, Children’s Hospital of Philadelphia was founded in 1855 as the country’s first children’s hospital. Through its long-standing commitment to providing exceptional patient care, educating new generations of pediatric professionals, and pioneering major research initiatives, the 595-bed hospital has fueled many discoveries that have benefited children worldwide. The pediatric research program is among the largest in the country. The facility has a strong history of delivering advanced pediatric care close to home through its CHOP Care Network, which includes more than 50 primary care practices, specialty care and surgical centers, emergency centers and community hospital alliances Pennsylvania and New Jerseyas well as a new inpatient hospital with a dedicated pediatric emergency department in King of Prussia. Additionally, its unique family-centered care and community service programs gave birth to the Children’s Hospital Philadelphia Recognized as a leading advocate for children and young people. Visit http://www.chop.edu for more information.

CONTACT:
Jennifer Lee
Children’s Hospital of Philadelphia
M: 610-800-6592
[email protected]

SOURCE Children’s Hospital from Philadelphia

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