New score measures health-related quality of life in patients with kidney failure

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Highlights

  • The results of a new study support the validity of a score that takes into account various patient-reported outcome measures and preferences for assessing health-related quality of life in people with kidney failure.
  • The score is calculated from ratings of cognitive function, depression, fatigue, pain disorders, physical functions, sleep disorders and the ability to participate in social roles.

Washington, DC (July 16, 2021) – The results of a new study support the validity of a score that takes into account various patient-reported interventions and preferences for assessing health-related quality of life and promoting patient-centered care for those with kidney failure. The study will appear in an upcoming issue of CJASN.

The score, which is referred to as the Patient Reported Outcomes Measurement Information System (PROMIS®) -Preference (PROPr) Summary Score, is determined from 7 areas: cognitive function, depression, fatigue, pain disorders, physical functioning, sleep disorders and ability to participate in social Roll.

When the researchers led by Istvan Mucsi, MD, PhD and Jing Zhang BSc, MPH (University Health Network and University of Toronto) correlated PROPr with other health-related interventions, their results supported the validity of PROPr in 524 patients who underwent or were undergoing hemodialysis recently had a kidney transplant.

“Up to 70% of patients with kidney failure suffer from persistent physical symptoms and emotional stress, which significantly impair their health-related quality of life. These concerns are too little reported, too little heeded and not adequately addressed, ”said Dr. Mucsi. “Our results open the doors for the use of PROPr and PROMIS® instruments in nephrological research and in the care of patients with kidney failure.”

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Study co-authors include Ron D. Hays, PhD, Janel Hanmer, MD, PhD, Barry Dewit, PhD, John Devin Peipert, PhD, Evan Tang, BSc, Daniel Breitner, BSc, Mohammed Saqib, BSc, Dan Li , BSc, Raail Siddiqui, BSc, Nathaniel Edwards, MS.

Information: The authors did not provide any relevant financial information.

The article entitled “Evaluation of PROMIS Preference Scoring System (PROPr) in Patients Under Going Hemodialysis or Kidney Transplant” will appear online at http: // cjasn.asnjournale.Organization/ on July 16, 2021, doi: 10.2215 / CJN.01880221.

The contents of this article do not reflect the views or opinions of the American Society of Nephrology (ASN). The responsibility for the information and views expressed therein lies exclusively with the authors. ASN does not offer medical advice. All content in ASN publications is for informational purposes only and is not intended to cover all possible uses, directions, precautions, drug interactions, or side effects. This content should not be used during a medical emergency or to diagnose or treat any medical condition. Please consult your doctor or other qualified healthcare provider if you have any questions about any medical condition or before taking any medication, changing your diet, or starting or stopping treatment. Do not ignore or delay seeking professional medical advice based on information accessed through ASN. Call 911 or your doctor for any medical emergencies.

Since 1966, ASN has led the fight to prevent, treat, and cure kidney disease around the world by educating healthcare professionals and scientists, advancing research and innovation, imparting new knowledge, and advocating high quality patient care. ASN has more than 21,000 members from 131 countries. Further information is available at http: // www.asn-online.org.

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